I got off the elevator on the fifth floor, made the familiar turn to the left, and paused just outside the office door, taking in one last deep breath before venturing back to The Land of The RE.
I had hoped to never return, yet there I was about to open the door again.
As always, I was greeted cheerfully by the receptionist, who remembered me and didn’t say in words that she was sorry for my loss, but she didn’t have to, as she said it with her eyes and her expression. I was almost immediately called back by one of the nurses, and as I was going to the consultation room, I walked past the primary nurse at the nurses’ station. She was so kind. She said, “I’m so sorry you have to be back here.” She paused before quietly saying, “What happened?” I got choked up as I told her that there was no heartbeat at my 10-week appointment and I finally miscarried at 12 weeks. It’s not often that I have to say it out loud, and clearly the pain of the fresh wound is still very near the surface. If it’s possible to give a hug with a sympathetic facial expression, she did just that.
I had about 5 or 10 minutes alone in the consultation room, so I was able to recompose myself in order to talk about moving forward.
The RE came in and also said he was sorry for my loss and that I had to come back there. He said that with two miscarriages now, they place me in the recurrent miscarriage category.ย (Whether my insurance company agrees is a different story. I know there are a couple tests that they will not cover unless you’ve had three consecutive losses [ie, no live births in between].)
Because I have had a successful pregnancy as well as two other pregnancies, he does not believe my tubes are blocked, so he still wants to pass on the hysterosalpingogram (HSG) for now. One cause of recurrent miscarriage can be a uterine abnormality, so he wants to do a sonohysterogram (SHG), where they fill my uterus with saline to check for physical abnormalities. He wants me to have this done before getting pregnant again, so I will call to schedule that when I get my first period, but because it will be done between cycle days 5 and 14, we’re officially out for trying that next cycle.
Because of the clot that was present during the last pregnancy, he wants to have some clotting tests done to check for thrombophilias. Specifically, I will be checked for cardiolipin antibodies and lupus anticoagulant. I had the blood test for that today, but the results won’t be back for two to three weeks. The fix for that would be baby aspirin or Lovenox injections during pregnancy.
He said we could return to treatments with whatever aggression we would like. I told him that IVF was off the table (which thankfully he didn’t push), but he did say we could jump to a super-stimulation cycle (with hormones injected to induce ovulation instead of Clomid) immediately if we wanted, but the estimated cost of that is $1,500 to $2,500 per cycle. We may have one shot at that, so I suspect we’ll save that for our last-ditch effort.
I asked again about use of Femara to stimulate ovulation, but this is an off-label use of the drug that is not approved by the FDA, so until a policy statement comes out suggesting the use of the drug for ovulation, he said he does not feel comfortable prescribing it.ย (My OB was the same way.) I’m sure it comes down to not wanting to face career-threatening litigation if something went wrong with a patient taking it, so while it’s frustrating from my point of view, I can also see the situation from his side too.
So I think the current plan — always subject to change — is this:
- Wait for next period. Call The RE to schedule SHG. Officially sit out that cycle.
- Wait for results on clotting tests.
- Ease back in with one or two cycles of Clomid (with ultrasound to check for ovulation), hCG trigger, and timed intercourse.
- Up to probably three more IUI cycles, including a possible super-stimulation cycle as our last effort.
Overall I feel pretty good after the appointment, finally feeling like I can take a few steps forward. Of course, taking forward steps so soon after the loss can result in feeling even more crushed if the cycles don’t work or result in another loss, but this is the only way I know to proceed that might offer good results.
The risk to my heart is so great, though I know the potential reward for success is even greater.